Name: Josslyn McClung

Date: July 19, 2002

Diagnosis: Brain Stem Tumor

E-Mail:
jenmcclung@juno.com

Josslyn's Testimonial

Our daughter, Josslyn,
was 9 1/2 when she pointed out to us that her left leg had a slight shake or tremor to it. We thought it was a pinched nerve or something. A month later (Dec.11, 2001), the tremor was now in her left arm as well. A cat scan was ordered and it showed that she had a brain stem tumor. She was given only a 20-30 percent chance of lasting an extra 1-3 years if she did chemo/radiation. This was not a cure but a poor chance at an extension of life. She was given 4-6 months to live if we did "nothing."

Through much prayer, the Lord directed us to take her to a clinic in Tijuana, Mexico. They immediately put her on Poly-MVA (1 1/2 tsp.) plus some other things. Two weeks into the program, her double vision was gone and her coordination had greatly improved. We were at the clinic for four weeks in January. In February, she seemed to be regressing so we put her on 5 tsp. of Poly MVA a day. We also started her on CoQ10. We found out a couple months later that this is necessary to help get the Poly-MVA to the brain stem area. God had already impressed upon us in February to start her on this after watching Dr. Sinatra's Video on Poly-MVA and CoQ10.


On July 11th, Josslyn celebrated her 10th birthday! We praise God for working a miracle in Josslyn's life. No matter how many days on earth the Lord has for our Josslyn, she has already outlived the doctor's predictions.
Josslyn feels great. Josslyn looks great. She is probably the healthiest she has ever been apart from the brain tumor.

To illustrate this she hasn't gotten any of the colds or viruses that other family members have circulated to each other these past months. We go once-a-month to the hospital to have her blood work done and a liver function test done. We had the first one done (since Mexico) in March. Every thing showed normal, even her hemoglobin, white and red blood cell count. Her third MRI in May showed that the tumor was slightly smaller which meant that it was shrinking and this was all without surgery, radiation or chemotherapy.


The oncologist's assistant called to ask what Josslyn was taking. They wanted to discuss her case that afternoon at their doctors meeting. When we go to the hospital to have her blood work done, she looks so healthy and the other children there on chemo look like they are so sad and feel so bad. People tell Josslyn she looks radiant, and she does.

Josslyn practicing her bedside manner!

We Give God the glory for her progress but truly feel that God led us to use Poly-MVA for her. She has an excellent out look on life. She feels great. In February we got a wheelchair for her because of the difficulty in walking long distances. Since the middle of May she has needed it less and less. The only thing that is noticeably wrong with her is that her left side is still weak. We have her in therapy, working to get those muscles working again after months of little use.

Her face muscles are no longer sagging like they were in Dec. and Jan. They have steadily improved to their normal state. We have noticed NO bad side effects from using the Poly. I hope her story will help others. She leaves for Church Camp next week which we would never have thought possible seven months ago. 

We give God the glory for her progress but truly feel that God led us to use Poly-MVA for her. She has an excellent out look on life. She feels great. In February we got a wheelchair for her because of the difficulty in walking long distances. Since the middle of May she has needed it less and less. The only thing that is noticeably wrong with her is that her left side is still weak. We have her in therapy, working to get those muscles working again after months of little use. Her face muscles are no longer sagging like they were in Dec. and Jan. They have steadily improved to their normal state. I hope her story will help others. She leaves for Church Camp next week which we would never have thought possible seven months ago.

God bless you!
Jenni and Dale McClung

 

 
 Updates May 2nd, 7th and 16th, 2003 (A Letter From Josslyn)

Josslyn had a cat scan in Oct. 02.
It showed that her tumor was relatively unchanged and that she did not have hydrocephalus. The doctors went ahead and put her on Decadron and over dosed her. They put her on 48 mg. The most she should have had is 24 mg. The next day we felt uneasy about her being on the steroids. We called the doctor's office to have her tapered off of the medicine and found out she was over medicated. It took 2-3 weeks to get totally off the steroids. At the end of the 3rd week, we had her MRI. It showed that the tumor had grown quite a bit. (See OUR INSPIRATION PAGE about THE DANGERS OF STEROIDS)The only difference was the steroids, which we believe caused the tumor to grow.

Josslyn was bed ridden from November to January 2003. In January 2003 we took Josslyn to New York City to get her tumor removed. She was originally diagnosed with an "inoperable" brain stem glioma. The New York Surgeon, Dr. Kelly, said it was an "operable" pilocytic astrocytoma. On January 23, 2003 Josslyn had her golf ball size benign tumor removed through a computer assisted surgery that was very non-invasive. She looked better even right after the surgery. We praise the Lord for directing us every step of Josslyn's journey. She was given a ZERO percent chance of gaining use of her left hand, arm and leg that was left weak from her tumor.

She has now recovered use of her left side by 90 percent!! The neuro-surgeon has never seen this happen before. I wonder if the poly had any effect on this miracle happening? I believe that the poly helped to give us time and prolong her life long enough for us to find a cure for her. It might have healed her totally but we came to a point where we were running out of time.

Josslyn is still taking 6 teaspoons of Poly-MVA for daily maintenance. We feel that it is a help to her health and overall recovery. On April 17th Josslyn's MRI showed that all the tumor was gone. Extensive blood tests were run and all of her markers were perfectly normal. We thank Gary Matson and Dr. Sanchez for all their support during this time. They truly care and that is why they are in this business. That cannot be said for many companies out there. God bless you all and feel free to contact us if you have any questions for us. We will also be happy to put you on our prayer list.

Jenni and Dale McClung
Mailto:
jenmcclung@juno.com
 

 
Postscript from Gary Matson:
I called Jenni on May 2, 2003 to see how Josslyn was doing. As soon as Jenni recognized my voice she turned the phone over to me to talk to Josslyn. This is sort of a routine for the past nearly year and a half so Josslyn and I have gotten to be pretty good friends. She said, "Gary, guess what," and I said, Tell me Josslyn. She said,
"I am learning to play basketball and I can dribble with both hands." I asked her about school and she said, "I just finished home school for this year and I get to go back to regular school in the fall." Then after a few more words she said, "Goodbye, Gary" and was off to practice her basketball. I was left with tears in my eyes as I remembered that she was given just a few months to live in December of 2001. Perhaps this helps everyone understand why we love our work with Poly-MVA.
 

 

5/16/03 E-mail from Josslyn's mother, Jenni McClung
Hi Gary,

Sorry it has taken so long to send this. I thought I would type it out since it is a little hard to read and the fax still isn't hooked up. I'll try to send the original by fax when I get it up and running.

Noshin is a little girl in Michigan who has a tumor on the brain stem. The authorities were trying to get a court order to make her parents (immigrants from Bangladesh) have the surgery that didn't offer much hope. They had taken Noshin (2 years old) to Canada for alternative treatment instead. We read about this on Monday 5-12-03. I had Josslyn read the newspaper article and this is the letter

I found that she had written all on her own to Noshin.


Dear Noshin,

My name is Josslyn McClung. I'm ten years old. And I had the exact same symptoms you have and I had the same thing you have. I was on Poly Mva (which stands for Minerals, vitamins, and AminoAcids). It worked until my brain tumor started growing, then a friend of mine told me about a Dr. that had done surgery on a little boy who had the same thing only I had found out the Dr. in New York looked at my M.R.I.'S And said I had a different kind. He operated on it and took it out. My eyes don't roll around, my left side is strong again and I am so happy. I thought everyone should have that kind of happiness so I got the idea to raise money to send you and your Mom and Dad to New York to have a visit with Dr. Patrick Kelly to see if he can operate. By the way mine was smack dab in the middle of my head, and I still have all my hair. (they just shaved a little hair on my hair line). If you want to you can call me some time. You are on my prayer list. God loves you so much.

Love a friend,
Josslyn McClung
.

 

 

UPDATE: January 24, 2004

Hi!
Just a quick note to let you know that we are fine. We just passed the one
year anniversary of Josslyn's successful operation on Jan. 23, 2004.
I am
all too aware of what a miracle God did for our Jossy. There are so many
people that we met in the clinic in Mexico that have died. There are alot
of children with brain tumors that we have heard about over the internet
with brain tumors that have also died. We give God all the glory and praise
for healing Jossy!!!

Dr. Kelly's e-mail is ----------. We also try to thank him
via e-mail around the 23rd to tell him thank you once again! Josslyn has
grown 4 inches in 12 months. She wears a size 7 to 7.5 in ladies shoes. She
wore size 4 this time last year. She didn't grow while the tumor was there
but almost immediately after surgery she started growing. She loves going
to school this year.
Her left side that the doctor said would stay
paralyzed is 95% back to normal.
Her left hand is not quite as strong as
the right and she has a small limp in her walk.

Well.....that's about all for now.
Thank you for all the many prayers you have prayed for our family and for
Joss. We can never thank you enough or praise God enough for all He's done
for us.

Love, Jenni





UPDATE: Friday, November 5, 2004 8:19 PM CST


No more do I feel like everything else is happening and I feel left behind. No more do I have to worry about things normal children don't have to. No more do I have to worry in the middle of the night about hospitals and medical hoosawhatsits. No more do I have to worry about all of my friends worrying about me when everything is okay. There was TOO MUCH WORRYING! It made me mad, it made me sad. It made me ALL UP FRUSTRATED! I could've worried about those things but I knew I didn't have to. Somehow I knew all God wanted me to do was try to be a normal kid, but not too normal. A Godly normal, but I don't have to worry about worry any more,
because my awesome powerful God is in control and I thank Him for it.

Now I just go to school, try to do my best and live each day as a normal kid.
NO MORE!!!!!!!!

written by Josslyn - age 12 11-5-04

 

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